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Are you experiencing constant dizziness / lightheadedness? You may have PPPD aka Persistent postural-perceptual dizziness. It took me years to find a diagnosis for what I was feeling- as PPPD isn’t detectable through any tests. Hopefully if you are in the position I was a few years ago, avidly searching for an answer to put your anxious mind to rest- you will come across this video!
PPPD relates to anxiety induced dizziness, feelings of lightheadedness, foggy head, being off balanced and spaced out. There are also other symptoms people may face, but those are the main ones! PPPD symptoms can be extremely scary and affect your quality of life, however it isn’t actually a dangerous condition. There are amazing treatment options available to deal with the symptoms of PPPD, opting for vestibular therapy/ vestibular rehabilitation myself which has been so effective and now I am almost dizzy free!
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Also forgot to mention that I also felt nauseas quite often which was really hard to deal with as I have a fear of being sick! In lectures it was the worst I kept having visions I was going to throw up everywhere- I think this was more of an anxiety related symptom.
Vestibular therapy exercises:
My video on the exercises I did: https://www.youtube.com/watch?v=tpAOrqnoiPk&t=1s
https://www.brainandspine.org.uk/our-publications/our-fact-sheets/vestibular-rehabilitation-exercises/
PPPD info:
https://www.dizziness-and-balance.com/disorders/psych/pppd.html
https://www.seekingbalance.com.au/pppd/
Socials:
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Music:
Music by Ryan Little – Lovesick. (Nomad’s Heart) – https://thmatc.co/?l=34847BB7
Outro: its manique here
Keywords: Constant dizziness, unexplained dizziness, unexplained loss of balance, unsteadiness, eye strain, foggy head, dissociation, dizzy everyday for years, foggy vision, how to treat dizziness,
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How did you get your diagnosis? I’m fairly sure this is what i’m experiencing. Not sure how it started, I do have really heightened anxiety and have had panic attacks, also ear problems so it started somewhere… Docs aren’t concerned about me but like you, I’m a hypochondriac so I constantly have a fear its something serious. I’m at a point where Its not completely debilitating, I have good days and bad days but I just don’t want to go down the route of endless appointments to get a diagnosis.
@E M J A Y styles Thank you!
Hey, my doctor referred me to ENT after ruling out cardiology/blood tests etc, so you could always suggest this to your doctor as ENT is linked with balance, or even ask your doctor to look up PPPD to prompt the referral. I completely understand what you’re going through and really hope you can get the treatment you need!
I’m currently going thru this hits more in public places and work thank you for making this video ima try and do these exercises
@E M J A Y styles I sure hope so too, thanks ‘
I hope they help you!!
Omg. I dont know how I came across your video. But I’ve been going through this for over a month. I’ve been to 5 docs. They have not found anything in test that ran on me. I thought I was going crazy. I can just be sitting and it hits me. And especially going in a market triggers it so bad. Scrolling through my phone triggers it. Sometimes I feel like I’m having a slight shortness of breath but feels like a small anxiety attack. I got to go back to a doc and tell them I think I have this. Did you get like a pressure on back of head and move all over? That’s how mine starts.
Hey girl, if it is PPPD then hopefully you can get an early diagnosis and start recovery! Not at the back of my head personally but I did get head pressure at the front which just felt horrendous in combo with my dizzy head/foggy vision
Hey, my name is Dalston I’ve dealt with this for quite a few years. I’m an entertainer so it’s difficult at time to juggle with the two as you mentioned you sometimes feel.. it went away for about 6 months then after a panic attack it returned. Do you have insta ? Would love to talk to you about all this!
Hey Dalston, ahh I’m sorry to hear that yes I can imagine it’s a struggle as a lot of people end up having to stop work:( yes of course, it’s styledbymegx
question here! okay, so my dizziness started from lifting weights in march of 2019… my “dizziness” is that i feel like i am going to faint all the time. and, before it kinda stayed this way i would only get dizzy from doing physical activity…. almost two years later i am still dizzy and it has affected my life greatly. anytime i strain or exert myself (lifting heavy stuff or going on a long hike in the summer heat) i feel worse. did you feel like physical exercise as i described made your dizziness worse? i dont have balance issues or anything… so im wondering if vestibular exercise would even help me at all. the only thing i super relate to you on, was i used to get super triggered by being in stores… but now i kind of retrained myself to be in them because is started doing instacart for that same reason (exposure). when i heal from this i am going to make videos too:) i super appreciate this video~!
Yes I still feel they can work for you as I think the exercise thing is a common and expected thing with PPPD as obviously if you feel dizzy all the time moving your head around and getting all hot can really enhance your symptoms- the vestibular exercises reset your signals that are currently off and as a result causing you dizziness as it isn’t correctly taking in the stimuli around you, I’m still not amazing at exercising but I can handle more than I could a few years ago when my PPPD was in full force 🙂 hope that helps!
Hey yess! I’m not a big exerciser anyway but when my PPPD was really bad I couldn’t exercise at all, even if I had to speed walk somewhere and overheated a bit it would make my dizziness so bad, probably because the feelings of being hot are associated with feeling faint!
I really think I have this, and it has devastated my life. Been going for 18 months now, and has even led to panic attacks. Been to see neuro and ent, no clear diagnosis. I’m doing vrt and thinking about srarting antidepressants. Feel constantly dizzy and lightheaded, objects tilting, feeling I’m sinking into the floor, or that the floor is tilting, or constant bed shaking. Major link with anxiety, everything is stressful now. So tired from it. Thanks for making these videos xx
Have this since march started after having covid last year never went away going into stores it gets so bad I need to leave sometimes.
Hey Melissa, ooh VRT sounds cool I can imagine that would actually be really helpful, yes I completely relate to all of those feelings I really don’t wish them on anyone! Aww I really hope my video has given you some hope! xx
@Balance Your Life Now thank you for your reply! I will definetely check your channel xx
Hey! You might find my YT hannel helpful, I am almost fully recovered from PPPD and trying to raise awareness and help others do the same
I’ve been suffering for a year.. And im 19 years old.. And im really scard .. Many ppl told me its can be for years .. Its me makes me sad..
Hi, just want to say that the sooner you do the exercises (see emjay’s videos), the quicker recovery time is. Trust me, it doesn’t go away until you do it. There’s hope!
@EMJ2456 yes it’s awful They always telling you don’t think about that
A year for me also came back this week hard
@E M J A Y styles
Thank you sm I appreciate it
That’s okay! Here’s a link to a second video I did talking about my recovery and showing the vestibular exercises I did that got rid of my dizziness, hope it helps ❤ https://www.youtube.com/watch?v=tpAOrqnoiPk&t=12s
My dizziness is 24/7, also i get head pressure, stiff neck, visual induced dizziness. Its hard to deal with this. Did you also felt 24/7 dizzy? Thank you so much!
Hello! I am from Argentina, I also feel dizzy all day, 24 hours, 7 months ago. Sometimes I also feel nauseous. It is awful. I have already been to many otoneurology specialists. I also feel a buzzing in my ear, I don’t know if this is related. Hope you are better
@EMJ2456 hey I’m sorry to hear that.
Have you seen a neurologist already? Did they do IRM scans of your brain/spinal cord?
@Erick Tavares I’m told its anxiety also. Your story sounds exactly like mine all same symptoms. Nobody believes me. Its hell. Like you said flare up!!! Almost go down lucky I’m young. If I was older probably wouldn’t made it this far. I feel so dumb. Cannot think remember our focus. Lost vision in my eye.
@starlite 77 I think it has to do with blood flow and oxygen to the brain. After months of suffering my only other po problems are burning hands and feet. Tjey are always cold and falling asleep. I told doctors this and they just write it off. I have been exercising more and eating allot of fruit. Some days are better then others. No help from doctors were in our own. A few coworkers experiencing it also and their doctors are saying the same its nuts. Stay moving and eat organic food and good red meats from a local butcher for iron.
@Melissa Brill yes you can message me @arrotvz
This is the video I needed. Thank you!! My symptoms started after my anxiety attack and it just comes and goes but it has been persistent for so long
I’m glad you found it helpful! Will be putting out a video talking more about the recovery/treatment process on monday:)
I’m honestly so happy I found this video. I’ve tried to find pages with people that have my similar symptoms. I’ve had non-stop lightheadedness/dizziness for almost 10 years oh, I’ve gotten CT scans an ear nose and throat test done they came back fine. I went to my otto-neurologist and he told me I have persistent dizziness and hearing about pppd that has every one of my symptoms! I’m most definitely going to bring this up with my physical therapist it’s so good to hear other people share the same experiences that I do with this disease
@Rory I just started my vestibular therapy about a week ago and I know it’s going to take almost a year to feel someone normal
Are you doing better now?
So glad it’s reassured you, I think a lot of people have had similar experiences with doctors not suggesting it until 5000 tests have been done, I myself had to mention the condition to my doctor myself! Will be also putting out a video Monday focusing on the recovery process:)
Thank you, Emjay. I have pppd too. Can I ask if you did every single exercise listed in your link, every day? There’s so many, that it can seem overwhelming. Thanks in advance!
@E M J A Y styles thank you so very much!
No probs! I actually have a video coming on monday talking about my recovery process and showing the exercises/frequency of doing them etc so this should answer your question:)
I am so happy i came across your video. My symptoms started last week and i have been crying ever since. I cant drive, i cant go out or sit in a coffee shop, nothing feels comfortable anymore. Please advise me, is it the excercises that made the biggest difference? And how many times a day did you do them for? And at what point did you stop them? Anything you could say to help me would make me feel so much better thank you so much darling!
@E M J A Y styles btw, i wanted to recommend you a documentary to watch on Netflix its called HEAL. Its quite amazing, it shows how can the mind heal the body. I highly recommend it!! Since we are both going through the same thing, i’d love if i can help in anyway as well!
@Dina Almalik I’d say I felt dizziness free earlier this year but recently it’s creeped back a little bit because of the anxiety surrounding lockdown and coronavirus etc, and obviously because of the pandemic I haven’t been able to get out and about in busy environments as much so my body’s not as used to it- so I’ve picked up my exercises again but I will mention more in depth in the video about this! Xx
@E M J A Y styles that would be very helpful, thank you so much ❤️this gave me hope that there is some sort of treatment out there that will get back to normal.. do you consider yourself fully recovered now?
I’m so sorry to hear you’re struggling with this! All of the exercises related questions will be covered in my video on Monday where I will show you which ones I do/ how long for/ when I stopped/ when I felt the effects etc so hopefully that will be useful for you!
I have had it for 4 years and it sucks. It is good to know others have it though and you can recover
I agree wouldn’t wish it on anyone! and yes I’ll be putting out a video showing the exercises I’ve done on Monday:)
Oh my gosh thank you so much for making this video! Have had this since last year when I had a really nasty ear infection (I have a perforated eardrum so it got into my middle ear) and it’s been driving me crazy, my GP thinks it’s BPPV with the crystals but the Epley manouevre doesn’t help so I’ve been super confused about what’s going on. I totally relate to all the stuff about foggy vision and brain, struggling with supermarkets, being worse when sat down… wow. I will be discussing this with my audiologist!
Oh yes that’s a common way that PPPD starts through ear problems!! Aww I’m so glad you’ve potentially found an accurate diagnosis- I will be putting out a video showing the exercises I do next Monday so hopefully if it is that it’ll be a useful guide for you xx
Madd This video is 100% me
Hopefully you feel less alone by this vid and the comments!!
Great vídeo! I’m in treatment for 8 months now and I’m like 80, 90% better. Started with a panic attack too. Im treating with psychotherapy and anti depressants.
what do you do when in therapy?
What treatment did they give you
Glad you found it helpful! Amazing, I love hearing other people’s success stories and treatment choices !☺️
It is worth mentioning if you haven’t already – Optokinetic stimulation. These Exercises are available to view on YouTube as well. These are what are recommended in addition to other vestibular rehabilitation by some leading hospitals especially in the UK.
Ooh this is interesting I’ve never heard of them- will take a look thanks so much for letting me know 🙂
I love you. THIS is what i’ve been feeling past 1.5 years. Friends, family don’t know and have no idea. They try but they don’t know. Sometimes I feel completely devastated and hopeless but some days its much better. I think being active makes it much better rather than staying sedentary. Also keeping a consistent sleep cycle is pretty important i think. I spent so much on doctors and tests but no one had any idea.
So glad this was reassuring for you! Yes I completely understand how you feel, I agree they are great tips! On Monday I’ll be putting out a video showing the exercises I do and talking about timescales of my recovery process:)
Hi, how long did it take for the exercises to work and did you do all of them?
@E M J A Y styles that’s great, thanks for the detailed reply
not sure exactly as tbh dizziness is something you don’t notice when it’s actually gone, but to estimate maybe like 6 months or longer to notice it improving. About a year to feel properly free of it! no I mainly did the side to side head movements and the cross focus one, will be doing another video showing you how to do the different exercises soon:)
I have this!!! It’s been 3 years! I’m 16 years old. All my tests came back good. Finally a specialist told me I might have PPPD and I searched the symptoms and I have allll of it! Like I feel it like I don’t seee it! It sucks so much. I mentally and physically so tired of it. I have bad anxiety as well. I’m so ready to get treatment! It sucks so much. I literally cry all the time from this. I can’t do normal life stuff. I felt soooo alone until I watched your video! Everything u said HAPPENS TO ME! Every thought and every feeling
Thank you so much for sharing your story!! I’m glad that I can make you feel less alone and by looking at the comments there’s probably quite a lot of us who have been through the same thing which is encouraging! Wishing you a speedy recovery lovely 💙
I feel everything more when I’m sitting, walking its sometimes better but I’m afraid to fall. In the car I feel normal so I like car rides. When I get panic and I see my hands things look further away and smaller… so crazy… It’s so hard to do my work I wish I could work from home. My back legs feet are stiff from being so tense and my neck. No one understands until they lived it.
Got the same as you! Everything is worse while sitting. Also, while I’m in the car it is like everything disappears, so strange.. walking is okey too. The worse for me is when I’m sitting still and trying to do something on the computer, it is like moving my arms and focusing on the computer make it much worse.. so strange
yes I get you sometimes sitting can feel like you are moving more! Yes car was my safe place too I think because the movement in a car is that obvious your mind doesn’t feel confused. Completely relate to everything you’re saying! Wishing you a speedy recovery ❤️
Ive dealt with this for a few years. In the beginning it was extremely debilitating. Just like you explained I thought I was diying, and it caused me to have constant anxiety attacks. Its not easy to live with, somehow throughout having this I have maintained a somewhat normal life which has been extremely hard. Many times Ive had to make excuses to not go out, etc because of feeling so off balance. Now Im doing a little better, little by little the exercises are helping me. Lots of meditation, a healthy diet, good amount of sleep, are such key factors into the recovery process along with the exercises. I am not fully recovered yet and still struggle but to anyone out there I just want you to know you are not alone!
Thank you so much for sharing your story- I don’t wish this condition on anyone it’s a nightmare but glad to hear you’re recovering. I’ll be putting out a video on monday showing the exercises I do and talking about the timeline of my recovery:)
What is the cure
The vestibular exercises I mentioned in the video and have linked in the description
this is me for the past 7 years it’s hell. all they say is it’s anxiety:(
Check for pots symptoms
Now fine?
Once it had happened really bad after an appointment and I called them to insist on the test my doctor referred me there for but they said I didn’t need it while I was feeling like I was dying
FRRRR
Same
Thank you very much for the video. I’m 21 and I think I’ve been suffering with this for like 10 years! The video was both educational and inspiring. Just wondering, did you go anywhere in particular to do Vestibular rehab?
about 2.5- 3 years I’d say, and erm I’m not sure exactly it’s one of those things where you don’t even realise that you aren’t as dizzy hahah, probably took around 6 months for me to feel obvious improvements:)
@E M J A Y styles thank you! I need to get some sort of method of Vestibular therapy – hopefully visiting somewhere in the NY. How long did you suffer with PPPD and how long did VR take to become effective?
I’m so glad it was helpful for you! The vestibular therapist in the ear nose and throat department printed off exercises for me to do at home daily:) I’ve linked them in the description!
Yes definitely i have pppd.. For me, when i drink 1 beer the dizziness îs gone, but i don t make a habbit from alchool. I have it for 8 months, all started after a panic attack… At beginning it was a lot worse, and triggered my anxiety a lot.. I went to a lot of doctors, nothing serios, just a lack of vitd3 an b12 and i took them for about 3months .Those helped a lot my condition. But i will try the vestibular therapy.. IT s strange, cause are days when dizziness doesn, t exist, but when i am stressesd out or worried, that shitty feeling of swaying în a boat îs coming back…
Thanks for sharing your story, that gives me courage..
@Gwen1978 Hate it!! It’s impossible to be normal like that. I can be completely fine and then boom!!! God bless you. I hope we all can get help and answers.
Have you ever noticed you feel normal for a few minutes then as soon as you do you can feel it again… like that is so annoying.
Thank you. All The Best!
Thank you so much for sharing your story too! yes it is very much linked with anxiety so some days it’s okay other days it’s unbearable- I wish you a speedy recovery! Xx
Thank-you very much. This video really helps.
Thank you so much for speaking about your condition so helpful 😘
Hi, this is really comforting to watch so thank you very much for sharing this. I got diagnosed with PPPD the end of last year but was suffering for 3 years and it took many many hospital appointments and referrals to get this diagnosis and I feel relieved finding out but it’s a everyday battle and with anxiety disorder it is hard. Like yourself being young it does make everyday difficult but it’s not nice because I wish you didn’t have to have this disorder but it’s reassuring to see and hear someone else going through the same thing. I do hope your ok and sorry for putting a long message on here it’s just I wanted to be brave and share my story like you and say thank you 😌 xxx
Awww I completely relate to all of that- you are so brave for sharing your story too! Wishing you a speedy recovery!💓
Thank you so much! This was really informative and helpful ♡
I’m so glad!!🥰🥰
Meg, this was really insightful watching this. Thank you for speaking up on this🙏🏾 you look beautiful as always💖
Aww thank you so much!! ❤️❤️
Should be so so proud you are speaking up and helping people who might be struggling! Also it’s very interesting because I had never heard of it before Haz’s video!!! Xxx
Heheh you cutie thank you 🥺🥺xxx
You are so beautiful inside and out!!🤍
Awww tysm girl!❤️
i relate so much and honestly it means SO so much to not feel like i’m being dramatic and i can’t be helped. i genuinely can’t explain how much you’ve helped with me trying to get a diagnosis as well as not feeling alone. i’ve had symptoms for 5 years and am only finally getting somewhere <3
I have struggled w/ this dizziness issue for 5 years as well. I finally got diagnosed w/ PPPD by a PT today.☺️
Awww girl this means the world this is exactly the reason I wanted to make this video!!! Feeling like you aren’t the only person in the world going through this is so reassuring, and I’m so excited for you to get better!!!❤️
I’m so happy that you’re at 10%, I’m legit over the moon for you! I can’t imagine how much you went through, I’m just glad you’re doing sooooo much better now 💛💛💛
Awww thank you girlie 🥺yeah it wasn’t the best!! Me too i feel like I can do so much more now 🥰😍
Oh wow… Megan I didn’t know anything about PPPD. I swear you are literally a gem for making this video and you were legit so informative about it, it’ll help so many people other there understand what it is, and most importantly, make them not feel so alone 😘
Yes, yes, yes, you are right on about this condition. I’ve had this condition for over 20 years off and on and of those 20 yrs. The last 3 yrs have been chronic 24/7. I sway, tilt at times, eyes are sore, vision is jumpy at times, neck pain, anxiety. The past three years of my life have been EXTREMELY stressful. And that’s why I cant heal fully. I was getting better and two weeks ago my 13 yr old child was admitted to the ICU for having diabetes and was in a state of having diabetic Keteacidosous when brought to the ER. The shock of hearing that just sent me into a more dizzy state and has been continuous. My son is stable now and is doing just fine, I’m so grateful, but my brain cant shut off. I have alot of anxiety from the dizziness so in turn it creates more anxiety, more dizziness and so on. I refuse to let this condition rule me and my life. We all will get better. Hang in there, treat the anxiety, VRT exercises, meditation, try not to stress and you will heal, I will too. I’m working on it. Thank you for your video. It’s nice to know I’m not alone in this. Sending many blessings to every person out there that has this condition. There is hope. 😊
Sorry just seen this!!! Awww you cutie❤️❤️❤️❤️
We appreciate you SO MUCHHH for speaking up about your condition 💛
Ilyyyyy!!❤️❤️❤️
I’m a textbook hypochondriac too. But for years I kept begging doctors to take me seriously that there was something wrong with me and it turned out I have suspect endometriosis, they still refuse to do the invasive surgery until I try and get pregnant (frustrating!?) I totally feel you with the uphill battle of trying to find out what’s wrong especially as you are so anxious about health it can be so awful for you mentally. Thank you for raising awareness! So many people will find this helpful angel!! Your beautiful and brave 💜
Awww girl thank you for sharing your story! Honestly just shows how much people go through and why you should be kind to everyone ❤️ that’s so annoying you it’s your body they should let you decide!! oh absolutely yes it’s a horrible cycle with anxiety:( thank you angel!!!❤️